Welcome
to this edition of the DS Support Newsletter!
| Hey
Everyone! I know it's been a little while since our last newsletter...sorry
about that, we recently moved and I think we are finally settled
in. You know it's kinda funny, I was so worried about Brandon adjusting
to the new house/school and I think he was the one who adjusted
the fastest out of all of us. He keeps on surprising me every day
with his abilities!
Jennifer
AKA Brandon and Ella's Mom
Please
note DS Support has a new phone number, 815-272-1068
|
| Upcoming
Seminar
IEP
Information
presented by Maureen Lowry-Fritz
May
5, 2008, 7-9 pm
location TBA
Work with schools, not against them.
Learn about special education law.
Develop your advocacy skills and become
an equal member of your child's IEP Team. |
 |
6th
Annual DS Support Buddy Walk
October 12, 2008
Don't
forget about this years Buddy Walk. It's going to be better than
ever!!
www.chicagolandbuddywalk.org |
Awareness
Project
 |
DS
Support still has a few copies of the teachers edition of the book
My Friend Isabelle
We want to distribute them to area schools and need your help. Please
pick up a copy and give it to your child's teacher. Please contact
us if you would like a copy.
Isabelle and Charlie are friends. They both
like to draw, dance, read, and play at the park. They both like to
eat Cheerios. They both cry if their feelings are hurt. And like most
friends, they are also different from each other. Isabelle has Down
syndrome. Charlie doesn't. |
Posted
on a DS Board -
DSALA - The Memory Keeper's Daughter #1
Posted by: "gail"
Mon Mar 17, 2008 11:35 am (PDT)
Here it is the film we have all be waiting for. Lifetime's presentation
of
"The Memory Keeper's Daughter." The best selling book was a
favorite of all
who read it. If you didn't you might want to pick it up and give it a
read
now.
I was able
to preview the screenplay and was very pleased with its
depiction. I'm looking forward to viewing the film soon and will give
you
my review. But for now, mark it on your calendar and get ready to enjoy
it.
OUR ADVOCACY
OBLIGATION
On the Lifetime website they have an advertisement for the film and a
place
to write your comments. If we want to see more media images of people
with
Down syndrome our voices need to be heard. Please go to the website via
the link below and give them your comments. Do if before the film and
tell them how important it is for you to see it and if you are planning
a viewing
party with family and friends or that you are emailing all your contacts
about the film, etc.
Then comment
again after you see the film and tell Lifetime what it meant to you. If
you don't like something about the film and want to comment on it, be
sure to compliment the film for something first. If they feel the community
just complains we will never get more images which in the long run will
help encourage full inclusion in all aspects of our loved-ones with DS
lives. http://www.mylifetime.com/on-tv/movies/memory-keepers-daughter
Premieres Saturday,
April 12 at 9 pm et/pt on Lifetime
Newsline
Legislative Update
More Info
Pre-Natally and Post-Natally Diagnosed Conditions Awareness Act
To: NDSC and NDSS Members and Affiliated Parent Groups
From: Susan Goodman, Director, Governmental Affairs, NDSC
Madeleine Will, Vice President & Director, NDSS Policy Center
Date: February 28, 2008
On February 27, 2008 the Pre-Natally and Post-Natally Diagnosed Conditions
Awareness Act (S. 1810), co-sponsored by Senators Edward Kennedy (D.MA)
and Sam Brownback (R.KS) was "voted out of the committee." This
means that the next step is for the bill to be scheduled for a vote by
the full Senate. Senate staff thanked NDSC and NDSS for our efforts in
moving the bill. Although this is a great victory, our work is far from
over! We will continue to track all developments in the Senate. The next
step is for a bill to be introduced and passed in the House of Representatives.
It is likely that a bill will be introduced soon and the process of moving
it through will begin. We will, as always, keep readers updated and Call
for Action at times when our advocacy efforts will be most effective.
The bill that was reported out of committee will be posted on http://thomas.loc.gov
soon. However, the precise time is not known. At that time we will publish
a summary of the contents of the bill.
If you have questions about this alert, please contact Susang1961@aol.com
or mwill@ndss.org.
This legislative update was approved by NDSC and NDSS for joint distribution
on Friday, February 29th.
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Chicago
Area Calendar
GiGi's
Fest
October 5, 2008
GiGi's Playhouse Hoffman Estates
Chicagoland
Buddy Walk
Oct 12, 2008
Ty Warner Park, Westmont, IL
www.chicagolandbuddywalk.org
NADS
2008 Conference
November 8, 2008
Rosemont Conference Center
Rosemont, IL
National
Events
THE
36th NDSC NATIONAL CONVENTION
July 11-13, 2008
Seaport World Trade Center
Boston, MA
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