Welcome to this edition of the DS Support Newsletter!

See everyone at the Bulls outing. There are still a few tickets left if you are interested in this fun outing! See below for details.

Jennifer


Get Ready to Rumble! -- Bulls Bus Trip

DS Support Bulls Family Outing
Grab the family for a bus trip to see the Bulls. Kids are on spring break so come on out and have some fun.

March 28
Bus leaves at 5:30pm from GiGi's Playhouse Too, game starts at 7:30pm
Bulls vs. Orlando Magic

Tickets are $20 each. Kids under 2 are free (if they are sitting on your lap)

The bus is limited to the first 55 individuals.
You can purchase tickets only, you don't have to ride the bus.

info@dssupport.net or 815-439-8693


April Meeting
Planning for Lifetime Care of Your Special Needs Child
Meet a Special Needs Team for Information on Financial, Legal and Social Issues
A team of experts who have assisted many families of loved ones with special needs will provide you with important information to help you with the financial, legal and social issues in caring for a special loved one.
WHEN: April 18, 2006
TIME: 7:00 PM
WHERE: GiGi’s Playhouse Too, 10052 S. Bode Rd, Unit D, Plainfield, IL 60544
PANELISTS:

Timothy Curley, Financial Advisor Merrill Lynch
Stephen M. Parlier,CFM, Vice President Sr. Financial Advisor Merrill Lynch
Thomas A. O’Donnell, Jr., O’Donnell & Julian, Ltd, Attorneys At Law

Click here for a PDF flyer
Please RSVP to info@dssupport.net


The following books have been added to the DS Support Library and can be checked out...

  • Changed by a Child, by Barbara Gill
  • Where's Chimpy? by Berniece Rabe
  • Count Us in. Growing Up with Down Syndrome by Jason Kingsley and Mitchell Levitz
  • DVD - DISCOVERY Pathways to Better Speech for Children with Down Syndrome

Articles seen on the Web...

The Down Syndrome Association of Los Angeles Applauds FOX’s Decision on the “R” Word
March 10, 2006
 
Los Angeles, CA – Peter Ligouri, President of FOX Broadcasting Network will lock out the word “retarded” from Fox Productions according to Lawrence Jacobs, General Counsel of Fox Entertainment Group and News Corp in New York in a response to the Down Syndrome Association of Los Angeles (DSALA).
 
Public demand has brought FOX to this decision. The National Down Syndrome Society in New York received phone calls from concerned parents about a promo airing during FOX’s top grossing show “American Idol” for the upcoming comedy series “The Loop.”  The promo included the statement “you have a retarded squirrel look on your face.”  NDSS alerted Gail Williamson, Executive Director of the DSALA and long time media advocate for people with disabilities. Williamson contacted Lawrence Jacobs who had come to her aid on a previous media issue.  Jacobs’ concern got the studio to pull the promo, but was told it was too late to re-edit the first episode of “The Loop” due to premiere on Wednesday, March 15th following “American Idol.”
 
The National Down Syndrome Society (NDSS), the National Down Syndrome Congress (NDSC) and the Arc of the U.S. have fought this fight before but never has a studio heard and responded to their concerns with such a definitive response.  Jacobs reported that Ligouri felt if the use of the word offended a group of people this much it should be left out of any program they produce.  Williamson and the DSALA have been campaigning to keep the word “retarded” from being used in the media to slam someone or something for many years.  She reports “the word exists on the medical charts of over 2 million people word wide trying to fit into their communities participating in education, employment, living, worship and recreation opportunities; it is extremely dangerous to use it as derogatory term. This casual use of the word meant to offend can escalate to isolation, segregation and even abuse of people with intellectual disabilities.”
 
Jon Colman, NDSS Acting Director, applauds Ligouri for this groundbreaking decision.  “NDSS is pleased with Fox’s response and hopes that other studios and networks will review how their Standards and Practices Departments govern the use of the word as well” said Colman.


From NDSS:

POLICY CENTER UPDATE
Together we are capable of great things. This past week 9,963 email messages were sent to the Department of Education, senators, and representatives in support of the NDSS/NDSC recommendations for the upcoming IDEA Paperwork Waiver and Multi-Year IEP Demonstration Programs (pilots). Credit goes to the thousands of dedicated parents who took the time to show policymakers that they are paying attention and remind them that they vote. This success would not have been possible without the many affiliates who forwarded the NDSS and NDSC alerts to their members and allies. We were also reminded of the tremendous value of our collaborative relationship with NDSC and with the other disability organizations and list serves that sent out our alert, including Wrightslaw. Thank you to all who contributed to this campaign we are impressed, and no doubt the Department of Education is impressed as well.

LIFE GOES ON-THE COMPLETE FIRST SEASON DVD RELEASE
Life Goes On-The Complete First Season will be released on DVD on May 9, 2006. Pre-order your copy at major retailers today and stay tuned for more Life Goes On news from NDSS in the coming weeks.

2006 Chicago Area Calendar

GiGi's Playhouse 3rd Annual 5K Fun Run/1 mile Walk
Sunday June 11, 2006
9am
Busse Woods
www.gigisplayhouse.com


DS Support 4th Annual
Buddy Walk

Sunday Oct 8, 2006
1 pm
Walker Park • Burr Ridge
www.dssupport.net/buddywalk

 

National Events

34th NDSC National Convention
July 21-23, 2006
Atlanta
www.ndsccenter.org/

9th World Down Syndrome Congress
August 22-26
, 2006
Vancouver Convention and Exhibition Centre
www.wdsc2006.com/

 

SAVE THE DATE

The date and place has been announced for the 2006 DS Support Buddy Walk! We've moved to a new place with great amenities and a playground for the kids. Our committee is busy planning the best Buddy Walk yet! Stay tuned for more details in upcoming newsletters and start getting your teams organized! Online registration will start in June.

DS Support Buddy Walk
Sunday, October 8, 2006
Walker Park, Burr Ridge, IL
www.dssupport.net/buddywalk

 

Our cuties of the month

Logan


Kamren

 

Down Right Amazing Cookbook
is available for $10 +$2.50 shipping
gigisplayhousetoo.com/cookbook.asp

Profits benefit the Petrando Family

 

Looking for something to do with your kids?

Check out GiGi's Playhouse.
Now 2 locations!!

www.gigisplayhouse.com
Hoffman Estates

www.gigisplayhousetoo.com
Plainfield