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Welcome
to this edition of the Down Syndrome Support Newsletter!
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All
I can say is WOW! What a great turn our for our 3rd Annual Buddy
Walk. We had over 950 walkers and raised over $44,000 that will
go to local groups and to NDSS.
What
a great day, it was wonderful to see so many smiling faces and so
much support from family, co-works, friends and dogs too.
Jennifer
"AKA, Brandon & Ella's mom" |
Buddy
Walk Wrap-up
Photos
Thanks to Michael Anthony Studios who photographed
the day for us. Photos can be viewed and purchased through his web site:
http://www.michaelanthonystudios.com
Thank
You to Our 2005 Committee Members
Nick Caracci, Member
Wendy English, Volunteer Coordinator
Jeanette Kerr, Fundraising
Jennifer Paganessi, Chair
Jason Paganessi, Treasurer
Andrea Prochaska, Registration
Sandi Skonieczny, Fundraising
Would
you like to be a part of the planning committee next year?
Let us know at info@dssupport.net
We
also would like to send a special Thanks to Al May. He was the original
organizer for our walk and this year he stepped aside to help start up
the D.A.D.S. program.
Sponsors
Thanks to the many wonderful companies
that helped make our day possible!
Silver
Sponsor ($3,000-$6,999)

Man Financial
Bronze Sponsor (0-$2,000)
A
Bouncing Good Time
Arbor Vitae Java & Juice
Cornerstone Medical
GiGi's Playhouse
GiGi's Playhouse too
Jennings Chevrolet
Milestones For Kids Success
Share & Care Daycare
Splinters Sports Club
The Foot & Ankle Institute
Event
Photographers
Heartworks Photography
Michael Anthony Studios
Refreshment
Stand provided by:
Pegasus
Packaging
Thanks
to SWIBCO for providing our buttons.
Silent
Auction Items
Chicago
White Sox - Autographed photo of Jon Garland
Chicago
White Sox - Autographed photo of Ross Gload
Chicago
Cubs - Autographed Baseball by Carlos Zambrano
Raffle
Items
Build-A Bear
- $10 in Cub Cash
ComedySportz - 4
tickets
Chicago Bulls - 04/05
Yearbook & pin
Chris Burke & his band -
Signed and Framed photo
DuPage Children's Museum
- Family Pass (Qty 2)
Drury Lane Oakbrook
- 4 tickets to Once Upon a Mattress (3 sets)
Eli's Cheesecake - 9"
cheesecake
Gold Canyon Basket - donated by Debbie Lewis
Hilton Lisle/Naperville
- Brunch for two
Chicago International Film Festival
- 10 free passes
Joliet Jack Hammers -
2 Box Seats
Kane County Cougars - 4
Lawn Tickets
La Finesse - Cut and Style
Maggiano's
- $25 Gift Certificate
Movie Basket- Incredible DVD & Goodies
Naperville Heritage Society
- 2 Family Gift Certificates
Northshore Magazine - 1 year subscription
Shedd Aquarium - 4
VIP tickets
Traverso's Italian Restaurant - Dinner for Two
Woodbine
House - 2 books, I Can, Can you & The Best Worst
Brother
Windy City Ledgends Framed Print - Donated
by Lou Skonieczny
911 Trivit - Donated by Lou Skonieczny
Tea Basket - Donated by Kris & Joe Kuchler
Wine - Donated by Betty Skonieczny
Arbor Vitae Java &
Juice - Coffee Basket
Palm Court Restaurant- $30 Gift Certificate
Tortorice's Pizza - Certificate for a free pizza
Hackney's Restaurant - $15 gift certificate
Grand Victoria Casino - Dinner for 2
Costco Wholesale - $25 gift card
The
best way we can thank our sponsors is to visit their establishment and
let them know you saw them at the DS Support Buddy Walk.
Exhibitors:
DADS (Dads
Appreciating Down Syndrome)
NADS
(National Association of Down Syndrome)
Frankie's Fund
GiGi's Playhouse
GiGi's Playhouse too
Heartworks Photography
Lisle Police Department
Lisle Fire Department
Milestones for Kids
Western Suburban Support
Group
Usborne Books (a
portion of their sales will be given to DS Support)
Congratulations
to our winning teams!! (based
on the funds that were turned in on Sept 24)
1st
place: Ariana's Angels Too
2nd place: Ariana's Angels
3rd place: Oliver's Outlaws
This was
our first year for teams and we cannot Thank
You enough for a great first year!
(Please
note we will list the complete team totals on our web site once we have
received all funds)
We
want your comments and ideas for the walk!!
Following
this newsletter there will be an email with a link to take a short online
survey. Please take a minute to fill out this survey so we can continue
to make the walk better each year.
http://www.zoomerang.com/survey.zgi?p=WEB224QFB5H93Y
Indian
origin doctor moots World Down Syndrome Day
Indo-Asian News Service
Johannesburg, October 22, 2005
An Indian-origin Singaporean doctor says the UN should be urged to support
a call for a World Down Syndrome Day March 21, with the inaugural one
on the child disease mooted for next year.
Balbir Singh,
president of Down Syndrome International (DSI), told the second Southern
African Conference on Down Syndrome and Intellectual Disability here that
his organization had officially earmarked March 21 as World Down Syndrome
Day (WDSD).
Down Syndrome
is the most common cause of mental retardation and malformation that affects
some newborns.
The objective
of WDSD is to commemorate, create and accomplish a level of awareness
and understanding of Down Syndrome through highlighting the potential
and ability of people with the syndrome to be an integral part of an inclusive
community, he said.
"The
date was chosen to signify the uniqueness of the syndrome as the Trisomy
21 chromosome is used synonymously with Down Syndrome," said Singh.
Down Syndrome Association (DSI) Singapore, founded by Singh some 25 years
ago, will host a series of events and activities to launch the inaugural
WDSD.
"DSI members and related organizations worldwide will be encouraged
to observe the WDSD together with the community in an appropriate manner",
Singh said.
He invited participants of the conference to send delegates to Singapore
for the inaugural celebrations.
Speaking
to IANS, Singh conceded that even if the UN acceded to the request for
an international day like the one proposed it may take some years because
of the processes that have to be followed.
Singh also
said that while India had a lot of state and non-governmental institutions
looking after the needs of intellectually challenged people, very little
was done specifically for people with Down Syndrome.
"As
in all communities, the Indian community also tends to keep children and
adults with Down Syndrome away from the public eye. There is unfortunately
still a stigma attached to this although people with Down Syndrome can
be useful members of society with support and acceptance."
Singh, who
got involved in the Down Syndrome fraternity after the birth of his daughter
Jaspreet 25 years ago, is proof of this. |